Our lives however are still changing daily as we ride this roller coaster. I feel like the last month has flown by and dragged on all at the same time and most days I can barely think straight. Angel got to where he was really feeling bad and we were devastated to find out that another treatment had failed us again. So one day we are doing a trial and the next we aren't, one day we are at Disney World and the next we're at the hospital. It's just always something and to top it off I am trying to keep life as normal as possible for the kids and you know what that means, all that parenting, the good and the bad are still there everyday!!! SLEEPY!
But I would do it all mostly the same if I had to do it all over again. The first thing I am so glad we did when things were tough over this last month was have an Amaze Balls Birthday Party for Angel! That guy is so loved and I was so happy to see so many people that have known him for years or even just a year show up and celebrate with us! A true testament to how wonderful his Ora is. Secondly I am so thankful that we went with our gut and chose not to do a trial. Wow, if we would have waited for a 30 day wash out we would have been up shit creek without a paddle!! I don't think we would have been able to get him back. For thirds, so so glad we took the kids to Disney World. Yes it was hotter then Hell and rained like no other but the kids had a blast and the memories will last a lifetime. What I would change is the pain that followed the trip that sent Angel to the hospital. That was sad and scary and I am so glad we now have his pain under better control. We have had company after company!!!(translate yourself) And now tomorrow we are going back to chemo! Ugh, I am not going to LIE, I know, I never do, but I'm a little nervous. Angel and I need some good news. Seriously!!! this shit worked before it better work again, we need time to make some more memories!
(oopsie, should have posted in June! still a good read though)
(oopsie, should have posted in June! still a good read though)
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